Archive for the Category »Multiple Sclerosis «

(HealthDay News) — U.S. scientists say they’ve coaxed human embryonic stem cells into generating cells that might someday be used to repair nerves damaged by multiple sclerosis.

The researchers pushed the stem cells to grow into critical nervous system support cells called oligodendrocytes, according to a report released Thursday.
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(HealthDay News) — People with multiple sclerosis may have a lower overall risk of developing cancer, Swedish researchers report.

The study, which tracked the medical records of more than 20,000 MS patients for 35 years, “found that they had some 10 percent decreased overall cancer risk compared with those without the disease,” said lead researcher Dr. Shahram Bahmanyar, from the Clinical Epidemiology Unit at the Karolinska Institute in Stockholm.

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You may remember my rant after I was ticketed by the City of El Cerrito because they apparently didn’t realize they had to honor my disabled parking placard from Connecticut. For anyone who runs into the same situation, here is the relevant state code that allows you to use your out-of-state placard:

California Vehicle Code

22511.5 (b) A disabled person or disabled veteran is allowed to park a vehicle displaying a special disabled person license plate or placard issued by a foreign jurisdiction with the same parking privileges authorized in this code for any vehicle displaying a special license plate or a distinguishing placard issued by the Department of Motor Vehicles.

So there.

Generally I try not to piss and moan too much about having MS. It doesn’t really do much good, does it? Doesn’t change anything. But I was just reminded about how much having MS can really suck.

Yesterday I was having a somewhat tough day with my MS. I was sick on Monday with something Lawrence picked up at school, so I was still somewhat shaky, and my muscles were just not working well. But I decided to go to Trader Joe’s anyway, since the fridge was looking a little empty.

I parked in a handicapped space, as I usually do, my Connecticut disabled parking placard in plain sight. I’m seeing my neurologist today, partly because I need her to fill out the form that will allow me to get a California one.

So when I come out, pretty pooped after half an hour of shopping, I see a parking ticket stuck under my windshield wiper. On top of it, some kind soul had left a note saying, “This is very inhospitable – can’t they see you are a visitor and wouldn’t have a Calif. permit?” Bless you, whoever you are. The note didn’t stop me from bursting into tears, but I felt better that someone understood I’d been screwed.

The moron who wrote the ticket wrote at the bottom, “Unable to read expiration date.” Well, gee, do you think that might be because, as it says in big letters, it’s a “Lifetime Disabled Parking Permit”? I would guess that the expiration date is the day I die, you idiot!

Of course, as I found when I called the police department, the problem was that the traffic cop didn’t know anything about Connecticut disabled permits. In fact, the cop who was manning the traffic department desk didn’t realize that, by federal law, all states must accept disabled parking permits from other states as valid in their own state.

So now, of course, I have to respond to the ticket by writing a letter and inclosing a copy of my disabled permit. Because, you know, I have nothing better to do than waste my time educating people about their jobs.

Can you tell I’m pissed off? As I said to the cop I talked to on the phone, “I’m sure I’m not the first person who’s used their out of state disabled permit here.” (It didn’t actually come out as snotty in person as it does in print, by the way. I managed to rein in my bitchiness.) He was very pleasant, and tried to find information about the law. I finally told him that he could probably get the information from our local congressperson’s office.

I really hate being disabled sometimes. There’s so much paperwork.

Yes, I do refer to myself as a cripple occasionally. Although that’s only when I am being reminded by my MS that I’m not normal anymore. Nothing brings that home more than a trip to Costco.

I used to love shopping at warehouse clubs. I mean, if you’re a true blue shopper, how can you not love it? You never know exactly what you’re going to find (in huge quantities, mostly). It’s also so gratifying to actually be able to buy a just released hardcover book at a reasonable price. If George loses me in Costco, the first place he looks is in the book aisle. He’s always amused, too. I think he’s still trying to get used to a wife who prefers books over expensive clothing.

But these trips are something really different when you have MS. The place is huge, which means lots of walking, and the floors are hard, which means really painful walking after a while. And there’s nowhere to sit down. But we get our medicine there, and a lot of our food, so we have to go at least twice a month.

So I have a few choices. I can let George go by himself and give him a list. But that removes the serendipitous aspect of shopping for me. So that’s no good. I can go and stick it out as long as possible and then go wait in the car. That’s not a lot of fun, either. Or I can use one of their scooters.

I hate using scooters. First of all, I don’t look like I need one. I’m 44 and not (very) overweight. I don’t have any limbs in a cast. So I know everyone’s wondering why I’m sitting in it.

Secondly, of course Lawrence wants to sit in my lap when I’m riding one, which he can’t do, so it turns into a big fight.

And then there’s also the fact that they’re a pain in the ass to maneuver and you’re down so low that you can’t see anything.

Plus, people do not move out of your way. You would think they would, wouldn’t you? But they don’t. It’s the same thing when I use my cane. They see the cane, and instead of stopping or stepping aside, they push past me. I guess they don’t want to be slowed down.

It pisses me off, though. I really feel like smacking them across the shins with the cane. I mean, for crissake, you can’t wait two seconds to let me pass, you asshole?

Okay, I feel better now. But I’m still not using the scooter when we go to Costco. Maybe I’ll bring my cane and trip anyone who tries to push past me.

That little incident last night (see below) brought home to me again how my Multiple Sclerosis doesn’t allow for a whole lot of stress to be put on my body without consequences.

After we found Lawrence, it took me a while to stop hyperventilating, and a couple of hours for the adrenaline to leave my body. I felt like I’d been beat up. Every muscle hurt. I was lying on the bed, watching tv (and listening to the monitor in case I heard the sounds of another getaway) when one of my toes started spasming and somehow pulling the muscle or tendon on the base of my foot. It was excrutiating.

George tried massaging the bottom of my foot, but longterm the only thing that worked was holding my toes so that the one toe couldn’t spasm. I actually considered duct-taping my toes together so I wouldn’t have to worry about it happening while I was sleeping.

You just have to laugh about these things, or the MS really will cripple you.

We thought we had lost Lawrence last night. We put him to bed and he was taking forever to go to sleep. Sometime after 8:00 I went into his room to sternly tell him to go to sleep, only to find that his bed was empty. I assumed that he was either hiding or getting a toy, but after a quick search of all the possible hiding places, couldn’t find him. Went outside and started calling. No Lawrence.

At some point I got George involved and he started looking. After a few minutes he called 911. When I was outside some women walking by volunteered to look and one of our neighbors came over to help us look.

Ten or so minutes later, I was checking the house and all of our 254 closets again, of course way past frantic at this point, sobbing his name, and I see him way back in the front closet, knees drawn up. Actually, I didn’t see him, just a piece of his pajama top.

I touched him to make sure it was really him, and then ran outside to tell the people searching, and the police pulled up right then. As I was telling them that we had found him, Lawrence started crying as the severity of the situation began to hit him.

I did warn him that he’d better not think of this as a good way to get a real live police office to the house. He must have been really freaked out, since he didn’t even try to ask the police officer any of the types of questions I’m sure he’s been dying to ask a police officer.

We think it had something to do with him starting school today, and I had also given him some cold medicine since he still was having trouble breathing from the cold he came down with a couple of days ago.

I’ve decided that those GPS tracking devices sound like a pretty good idea at this point.